This blog is about life with Noah who has autism, sometimes it has him. Life is a rich tapestry of beauty and poop.
Friday, December 17, 2010
Thursday, December 16, 2010
The crashes worked!!
I am pleased to report that doing crashes and moving shower time has helped with the anxiety and wind-down again. So on the shopping list is lavender airwick refills, lavender soap and lotion, and foam soap. All of these work for calming anxiety in Noah.
Noah is awake longer than I would like, because I would like to have a normal bedtime. However, I suppose having to stay up a bit later and watch some late night TV isn’t the worst thing in the world. (That is being smacked and screamed at by the autism-monster). If only I could train my body to make the morning adjustment and sleep later, but know I wake up between 5:30-6:15 every day.
Ah..a sigh of relief…for now.
One thing I can say for certain, Noah when not the autism-monster, is the most polite and obedient child. Because of that, it becomes obvious when he is not in control, he is just not himself. Behavior is always a symptom of something, the test is finding out what it is.
Noah is awake longer than I would like, because I would like to have a normal bedtime. However, I suppose having to stay up a bit later and watch some late night TV isn’t the worst thing in the world. (That is being smacked and screamed at by the autism-monster). If only I could train my body to make the morning adjustment and sleep later, but know I wake up between 5:30-6:15 every day.
Ah..a sigh of relief…for now.
One thing I can say for certain, Noah when not the autism-monster, is the most polite and obedient child. Because of that, it becomes obvious when he is not in control, he is just not himself. Behavior is always a symptom of something, the test is finding out what it is.
Wednesday, December 15, 2010
No Rest for the Wicked
It was ten days before Christmas and all through the house all of the creatures were stirring because Noah was restless again.
Noah has had sleep issues on and off for…well since birth. We did get it under-control this time last year after taking melatonin for a few months and being fortunate enough to take our first vacation. He was staying awake until midnight or later most nights, but once we started the melatonin he was going to sleep by 10 most nights. Since the clocks went back, it’s been a growing battle. Now the mornings are back to the joyous times of the past where he battles me about going to school, or wants me to build him a time machine.
I get the time machine request. He isn’t the only person I know who wishes to have more time, or wants to go back in time to make changes. Perhaps if he listened to me the evening before and went to sleep when requested, he would have woken at the normal time. But it isn’t all his fault. His body is wound up and restless. I get it since I had restless leg syndrome during my pregnancy-which is this creepy feeling in your legs where they want to run but are too tired to do so. Except it’s not just his legs, it is probably his whole body.
I have considered doing the melatonin again, but I know more occupational therapy is a better fit. Unfortunately his current OT can only work with him in school, and though she is practically magical, she is very pregnant and can’t toss him around like she normally does. I have no doubt she does the most she can with him. I have done occupational therapy with him over the years; however I am not as magical in that way. I also have limited time and energy because of necessity of work, which occupies just about every Noah-free-minute I have.
It is an annoying circle. Insurance doesn’t cover autism therapies, so you have to rely on the school or pay for it yourself. But to pay for it means you need more money. But if you already don’t have enough you need more work to pay for it. Yet there are only so many hours in the day, and if you burn yourself out trying to make the money. Then what is the point if you’re dead before your time or now in need of therapy yourself?
Ah Summer...and Beach Success!
Regardless of the trials, I know the only thing I can do is keep moving forward. Staying positive is all you have sometimes, and being persistent is more important to finding success then most other things in this world. You have to figure for everyone who succeeds, someone else had to fail. This is why I keep going, one day it will be our turn, and we will be the ones who are fortunate and successful and it will be our jobs to help those who aren’t as fortunate yet.
But for now, I suppose I will give him a few more crashes and tickles, and some melatonin.
When Noah is restless he likes to get into things, line them up and crumble playdough...or paint the dogs, floors and what-not with glitter glue.
Noah has had sleep issues on and off for…well since birth. We did get it under-control this time last year after taking melatonin for a few months and being fortunate enough to take our first vacation. He was staying awake until midnight or later most nights, but once we started the melatonin he was going to sleep by 10 most nights. Since the clocks went back, it’s been a growing battle. Now the mornings are back to the joyous times of the past where he battles me about going to school, or wants me to build him a time machine.
I get the time machine request. He isn’t the only person I know who wishes to have more time, or wants to go back in time to make changes. Perhaps if he listened to me the evening before and went to sleep when requested, he would have woken at the normal time. But it isn’t all his fault. His body is wound up and restless. I get it since I had restless leg syndrome during my pregnancy-which is this creepy feeling in your legs where they want to run but are too tired to do so. Except it’s not just his legs, it is probably his whole body.
I have considered doing the melatonin again, but I know more occupational therapy is a better fit. Unfortunately his current OT can only work with him in school, and though she is practically magical, she is very pregnant and can’t toss him around like she normally does. I have no doubt she does the most she can with him. I have done occupational therapy with him over the years; however I am not as magical in that way. I also have limited time and energy because of necessity of work, which occupies just about every Noah-free-minute I have.
It is an annoying circle. Insurance doesn’t cover autism therapies, so you have to rely on the school or pay for it yourself. But to pay for it means you need more money. But if you already don’t have enough you need more work to pay for it. Yet there are only so many hours in the day, and if you burn yourself out trying to make the money. Then what is the point if you’re dead before your time or now in need of therapy yourself?
Ah Summer...and Beach Success!
Regardless of the trials, I know the only thing I can do is keep moving forward. Staying positive is all you have sometimes, and being persistent is more important to finding success then most other things in this world. You have to figure for everyone who succeeds, someone else had to fail. This is why I keep going, one day it will be our turn, and we will be the ones who are fortunate and successful and it will be our jobs to help those who aren’t as fortunate yet.
But for now, I suppose I will give him a few more crashes and tickles, and some melatonin.
When Noah is restless he likes to get into things, line them up and crumble playdough...or paint the dogs, floors and what-not with glitter glue.
Monday, December 6, 2010
Saturday, December 4, 2010
Where Does the Time Go?
Writing in my blog hasn’t occurred much recently at all. All of my time for writing has been spent on making money due to the necessity of having it for those pesky things like the electric bill and groceries. Still, the blog is more enjoyable, and like many writers, I hope it will one day bring in some funds so I can justify writing in it. Or I hope to at least win the lottery so I can write more.
I am a HUGE believer in doing what you love, following your natural talents and abilities and not selling yourself out or short. I live this and I am hopeful one day I will also reap the financial benefits, or at least make things even from some bad luck from the past. I am grateful I am determined, unshakable, and keep persevering despite the length of this journey.
I believe a person who has interests that drive them-has to do this, because there is no real choice if they want to be successful and fulfilled. If you don’t have many interests and just wish to make money to survive this is something else, life isn’t just work. But I believe most people have abilities and gifts they should share as opposed to squander. A career takes up most of a person’s time, where a job can vary.
Time is a valuable resource in which we cannot replenish or buy, no matter what we do; it just has to be spent wisely. So here's to spending my time as wise as possible and working smarter, not harder. I need to divide some of my time for this blog and other non-income generating things which can one day lead to more income. Perhaps 25 percent of my allotted time is a fair amount.
Wednesday, November 24, 2010
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