Showing posts with label hope. Show all posts
Showing posts with label hope. Show all posts

Sunday, December 26, 2010

Yes Noah There is a Santa Claus


It is easier to dismiss the idea of magic, than it is to believe in something you don’t see or haven’t experienced, when you are an adult. Noah was questioning whether Santa was real this year, I don't know if it was because he had some difficulty more recently, or because I told him christmas was going to be light.

When you are child, believing in magic of course is much easier, and not believing it in would feel foreign and wrong. Something happens to us along the way which flips these two ideas-the one which believes with the one marked with cynicism.

Life happens to us, as we live we lose. We lose people who mean the world to us, we lose jobs, pets, friends, and sometimes we lose our homes, our sanity and even our way. The loss of things that mean more than a misplaced toy, slowly affects our inner-workings. We still believe, but our prayers go unanswered much more often than they did before.

At some point we get to a cross roads where we can take one path or another. We can choose to believe in good, in magic and in life. Or we can choose to dismiss those things, value them as unimportant and embrace bitterness. My husband took one road, and I have been on the one which believes in magic, even though countless things have happened to me which should kill that. However, there has been magic too, like blowing a tire on 95 in the middle of the night and being picked up by nice people who drive you home, and like what happened to us this Christmas.



Most of us Have Been Dealt a Bad Hand from One Time or Another.


Sometimes the hand is temporary, and the next round is better. We only wind up a bit behind, maybe we still break even at the end of the game, or only take a minor loss. And with that loss, we at least gain some wisdom.

Other times the hand we are dealt is not the type we can recover from so easily. Not without the help of others, and not without a little magic.

The idea of Santa Claus when you are a child fills you with hope, excitement and can make you a bit nervous. Santa is judging you after all, but it didn’t feel harsh, cruel or in the ways people judge each other later in life. Santa still accepted that even if you were flawed, you were still worthy, and loved for trying.

As you grow older you then can find yourself feeling as if magic is dead, it never existed, and it was just a lie. Cynicism takes hold, yet somewhere within me, I refuse to accept it.




We had some bad luck about 6 years ago, just before Noah was diagnosed. I will give what I call the Reader’s Digest version.

We are a good example of people who did things right, made good choices. We saved money to buy the current home we are living in, and bought something a bit smaller to not have to take on a huge mortgage when a smaller house would be just fine for awhile. While selling our former home laws changes regarding underground oil storage tanks, and it took some 2 years to get the house sold. During this time we had 2 sets of taxes, mortgage payments, water bills and though we lived conservatively, we could not afford 2 homes. And it wasn’t as if we could sell the new one and move back into the old, it had an “environmental problem” now, and was deemed uninhabitable. So there was inevitable debt, plus testing and clean up costs for the soil. This wound up costing close to just over 75,000 dollars. Then Noah was diagnosed with autism, just after the house was sold. The costs of Autism ran up another 40,000 over the past five years.

We still live frugally; we do all the things suggested to save money. No landline phone, cheap cable, thrifty shopping, and no extras. We do not buy new coats or shoes every year. We do not go shopping for fun stuff; we do not go out to eat. And for seven years, never took a vacation. During Noah’s treatments it was not possible for me to go back to work fulltime, it still isn’t because there is no one who can handle him in between. When he was getting therapy it had to be done here, for 40 hours a week, with multiple therapists. But I digress, I wrote all about that in a book.

We both work as much as possible, but it isn’t enough to keep up with the $1,000 of debt bills we have in addition to regular bills each month, but it helps. If not for our frugality, things would be worse and we would have lost our home years ago. So even though it is this way, I am grateful it isn’t any worse, and I have always believed deep down, since we didn’t ask for or create any of this. One day, the universe will balance, and it will be ok. One day, there will be such prosperity it will give new meaning to our suffrage. I have always cared about others, but it will force me to never forget…when I am wicked famous :)

The economy has been a problem for many people the past few years, at first for us it wasn’t that much different. We were already living the way other people now had to. Of course with no raise from my husband’s job for over 2 years, but higher costs for everything, healthcare, tolls, taxes ect. We now had less money, for an already stretched out budget. We skip meals, we are sometimes cold, but I have also found that you can adapt to a lower thermostat and make it a personal goal to push it a bit lower each year. Christmas has always been small for us; we give to others, but not ourselves.



A Child Shivers in the Cold, Let us Bring him Silver and Gold.


This year, a miracle happened. I decided to look into getting food from our town’s food bank. Hoping this will help shave something off of the food bill. I figured there wouldn’t be too much for Noah’s diet and particular aversions. But something is better than nothing. Somehow this outreach for help led to help.

A former school mate, and now current council member of our town decided to do something about it. His wife and he did a toy drive, they collected gift cards, cash, boxes of gluten free/dairy free food and reached out to two members of the Maple Shade Business association who are Santa and Mrs. Claus ever year.




These two people have been adopting a local family every year for the past 12 or 13 years, it is their gift to each other. They deliver gifts, and bring food. This year, it was our family they shared Christmas morning with. This also led to another old friend donating a tree to us, and some elves who know Noah’s occupational therapist donating some food gift cards. Another writer from one of the websites I write for is sending a $100 to us after I mentioned part of this story in our forum, not because I was asking for help. But because I was remarking how wonderful people can be, and they are as good as they are nasty.


Noah woke up earlier than expected on Christmas morning as children can do, and found nothing new under the tree. “My sock is empty.” he said, and noticed Santa’s coconut milk and cookies were still uneaten. He didn’t cry, or get upset-though I think the Farmville gift card in his stocking from me took the sting out. He just said he would go on Farmville and open his presents!





About twenty minutes later, Santa and Mrs. Claus knocked on the front door, and with them brought cookies and gluten free dairy free donuts for Noah, as well as two huge contractor bags of wrapped presents.

“ Wow Santa you were busy at your workshop”

Noah was extremely happy and excited to tear through gift after gift, even was excited to open up box which held an Eagles sweatshirt and wind breaker.

“Oo a sweat shirt!”

They had a big wheel! Something we wanted to get for him for some time. Legos, playdough, games. Noah is a big toystory fan, and someone even got him the Andy's toys gift pack, I couldn't afford to buy this year because I missed the black friday sale at Target. I cried when he opened these gifts.
They even had a few gifts for my husband and I. His heart did indeed grow "three times this day." My favorite was an ornament of a stocking with one small powerful word on it. Believe.




On Christmas Eve, our new best friend dropped off a ham, card and small box to us to be opened after Noah went to bed. We opened this, and it was full of gift cards. So many we had to keep reaching in the box and more and more came out. What we received from the good people of Maple Shade was more than what was in the many boxes. Hope, love and belief were the best presents of all. I am always overjoyed when I see people helping people, it gets me every time. I just never knew it would happen to me one day.

Gift cards and presents = about 60 items
money, gift cards, food, presents for Noah given = about $3,000
Hope, faith restored and love= Priceless




It isn't as if this will wipe away all of the debt by magic- it certainly helps, and this Christmas was the best ever. It absolutely has made me believe this is the beginning to it getting better. All of this generosity warmed us so much inside; I didn't feel cold in the 62 degree house. And now some extra money means I can crank that heater up to a steamy 65 degrees..at least for the next few days. There is enough food, and food gift cards to last us until February at least.

I know Santa is real, he was in my living room! Twice, but only one of them had a beard. Santa is as real as love is real, and magic is real, for it took a bit of it and some luck for this to happen. When people come together like this, it is amazing. I have loved Maple Shade my whole life, people often joke about how you can't leave it, if you do, you come back. This is one of the reasons why. Local businesses helped too, they donated, and one night this week Joe and I will enjoy a nice dinner out, thanks to Charlie Browns.

Thank you good people of Maple Shade and elsewehere you helped our family this magical Christmas.

Yes, Noah there is a Santa Claus.

Friday, February 19, 2010

It's not a cure, but it is the next best thing




When I decided to write a book about Noah and his Autism, I knew it wasn’t going to be a bible about how I cured him. Mainly because he is not cured, and I thought it was more important to feature how we function and accept it. Though it is true, we have improved the situation greatly from where it began we also do not know from one day to the next what kind of day he will have, and therefore what kind of day we all will have. We also do not know what the future holds and what kind of new problems will surface or even old ones we thought were just bad memories. This is why I choose to focus on the present, since only you and your place in it is in your control.

So a blog is a natural step, figures it makes sense to share the day to day, good and bad.

A typical day here involves my husband waking at about 5:40 for work, I usually awake then but do the best I can to squeeze another hour before Noah is up. From the moment I open my door I am greeted by our two golden retrievers Fred and Chewie, usually I hear their tails beating on the walls of the hallway with a steady rhythm once they hear me rouse from bed. Once I open the door the fun begins, Fred is usually holding something in his mouth and whining, Chewie and him are following me quickly anywhere I go…which is almost always the coffee maker where I make my mommy fuel. Next on the line of annoyance is Sami the cat, he is usually whining heartily for more food since he ate it all over night, or the bowl is just dangerously low. The final cog in the machine of annoyance is Noah, who is also very hungry and starving, and somehow has the ability to bounce around even though he just awoke. Most mornings he next gravitates to the computer. Which is where he spends the next hour and half before the bus comes to pick him up for school. Routine is breakfast there, he gets dressed around 8:30, and the bus is to come sometime around 8:45. Then it’s mostly peace and quiet until about 3:20, not completely because the dogs require a lot of attention and Fred really hates the cat across the street, he barks at it even when it is in its own driveway. But regardless, it is a very important part of the day that can be filled how I choose, and gives me much needed space to contemplate and complete the things that need to be done.

Every day with Noah is spent teaching him the things that typical children just understand or get on their own. Some days are much easier than others, and sometimes what can be the most shocking is when you don’t see the meltdown coming. Mostly because he was doing well, almost where you can forget he even has a problem.

There is nothing wrong in my opinion to look for a cure to a problem, condition or disease. But from what I can figure, is while science is out there trying its best to find a cure for Autism, maybe the only thing we can do is adapt to it. Accept the things we cannot change, change the things we can and have the wisdom to know the difference.